Battery Operated Pancreas

Just another day in the life of a diabetic…

Day 7 of dBlog week – Diabetes Hero (or in my case Diabetes Heroes!!)

Today”s Topic:

Let’s end our week on a high note and blog about our “Diabetes Hero”.  It can be anyone you’d like to recognize or admire, someone you know personally or not, someone with diabetes or maybe a Type 3.  It might be a fabulous endo or CDE.  It could be a d-celebrity or role-model.  It could be another DOC member.  It’s up to you – who is your Diabetes Hero??

Wow! This week has flown by in a heartbeat! I have enjoyed this week immensely and the writing really got me thinking. While I have read only some of the posts, so far, I definitely plan on taking my time and reading through them all. I love the idea of ending on a high note! That being said, I’m not sure that I could just pick one person to be my Diabetic Hero. You see, until about 5 years ago, I had never met another type 1 in real life! I knew they existed in the wild, or so I heard, but never really saw one with my own eyes! Since then, I have met so many truly amazing type 1’s! I got to meet many of my friends from the DOC in person, which is always an amazing treat! I got the chance to chat with Phil Southerland at the UN Conference back in September. I have to say I got a little “star struck” over the thought, but thank goodness I got past that pretty quickly and was able to chat with him! I also got to say hello to Nicole Johnson of dLife, at a TCOYD seminar I attended almost a year ago. All my DOC friends I interact with almost daily on Twitter and Facebook, who cheer me on or pick me up when the going gets rough. All of the people participating in dblog week, who remind me I am not alone. Let’s not forget my personal friends who just happen to live with diabetes. Every day these people never cease to amaze me and are truly my heroes! Each and every one of these people inspire me to live life to the fullest and reach for the stars! You guys are my heroes, and I thank you all from the bottom of my heart!

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Day 6 of dBlog week – Saturday Snapshots

Today”s Topic:

Back for the third year, let’s show everyone what life with diabetes looks like!  With a nod to the Diabetes 365 project, let’s grab our cameras again and share some more d-related pictures.  Post as many or as few as you’d like.  Feel free to blog your thoughts on or explanations of your pictures, or leave out the written words and let the pictures speak for themselves.

I snagged this while David and I were walking over the Pulaski Bridge from Long Island City into Brooklyn.  I happen to like it a lot:)

David low and being awfully cute posing for the camera with a gummy lifesaver!:) (lows don’t usually look this way! lol)

NYC Tour de Cure 2011….GO RED RIDERS! Best experience EVER! From l-r myself, David, Soara-Joye, Emily and Caroline! Gotta say, I felt pretty bad-ass riding along side of traffic in NYC!  (slightly blurry, wish I had a better picture!)

I’m always appreciative of help in the kitchen! David cleaning up after dinner on WDD 11/14/2011….Like the shirt?!;)

David and I last summer, Fire Island.

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Day 5 of dBlog week – What They Should Know

Today’s Topic:

Today let’s borrow a topic from a #dsma chat held last September.  The tweet asked “What is one thing you would tell someone that doesn’t have diabetes about living with diabetes?”.  Let’s do a little advocating and post what we wish people knew about diabetes.  Have more than one thing you wish people knew?  Go ahead and tell us everything.

I was doing so well with keeping up with the posts and today just….happened. Life happens. Diabetes happens. There is so much I want to teach non-diabetics, where to begin is a bit overwhelming to me. I guess I can start at the beginning and if I forget something, oh well, sh*t happens. I enjoy teaching people who are not in the know about diabetes, but sometimes all I want to do is fade into the background and be invisible. I am not just a diabetic, I am a whole person, with a life, who just happens to be living with diabetes. Sometimes I’d like a break, but such is life.

I’ll start off by saying diabetes is something that affects every single part of my life. Physical, emotional, mental, from what to wear to what I eat, how I eat it and when I eat. It affects every single second of every single minute of every single hour and you get the point. Not that I am always thinking about it, but it is a constant thought. Will this high blood sugar now affect me down the line? Will it be the cause of another complication? Is this low causing me brain damage? (or drain bramage, as I like to say) I just tested 20 minutes ago, but I better test again before I get into that car to drive. It is hard. Very hard. But, we as humans are extremely adaptable and we somehow tend to manage. But sometimes all we want is a d-vacation. Our lives are constant battles with numbers. We are the epitome of eating disorders. Seriously. We are constantly counting carbs, fat, (supposed to be) weighing and measuring the food we eat. Some days it feels like a constant uphill battle and other days life throws us a bone and our CGM’s plank. (I Thank God for those days!) It really isn’t all bad, and I certainly don’t want sympathy, I’ve been doing this for a very long time. All I’d like is some understanding, some slack on the days when I’m not up to whatever the day brings me. I wish there was a social experiment for diabetes, kind of like the ones where they give high school students eggs to care for, simulating a baby. Maybe give non-diabetics a huge bag to carry, a pump filled with saline, that beeps all the time and a meter and someone to remind them “you can’t just stuff that huge brownie in your face, you gotta test!” lol I really am more of an advocate for education, usually. I guess I’m just having an off day. It happens.

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Day 4 of dBlog week – Fantasy Diabetes Device

Today’s Topic:

Today let’s tackle an idea inspired by Bennet of Your Diabetes May Vary.  Tell us what your Fantasy Diabetes Device would be?  Think of your dream blood glucose checker, delivery system for insulin or other meds, magic carb counter, etc etc etc.  The sky is the limit – what would you love to see?

As diabetics living with such awesome technology, we all have these amazing ideas on how to make things better, or invent the coolest gadget that could do this or that…but in reality, these ideas rarely come to be. I use a Minimed Paradigm pump where as David uses a Animas Ping. I see the ins and outs of both on a daily basis. We each love our pumps respectively, but, sometimes I wish I could take the best things from his pump and meld them with the best things from my pump to make an awesome super-pump! He’s got such great features on his. For example, his meter doubles as a remote for the pump, so that sucker could be tucked away and you still bolus (very cool, in my opinion) the meter also has carb counts of many foods, again also very awesome, the super bright screen and it’s waterproof (need I say more?) But then there are the things that bug the ever-living hell out of me with his pump. The excessive noise it makes while pumping! (WTH?) The super loud beeps while you’re pushing the buttons to bolus, the stupid song that NEVER shuts up when it’s low or out of insulin!! I used to like the song Fur Elise until his pump came along! And that God-forsaken clip that breaks if you look at it cross-eyed!! I would take all the things I love about my pump: solid construction, shape, color, quiet beeps and virtually soundless delivery and the way you can bolus in very few button pushes (proprietary to Minimed) and pair it with all the good things about his pump that I mentioned. I would make the device smaller, that would be great! I would integrate the pump, CGM and meter all into one small device. Add one more feature to this all in one device, a scanner that could read the amount of carbs on the plate of food you’re about to eat and send that info to the pump before bolusing, now we’re talking!!

All of these ideas are nice, but if I could just get my pancreas to work again…now that would be the ultimate !

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Day 3 of dBlog week – One thing to Improve

Today’s topic:

Yesterday we gave ourselves and our loved ones a big pat on the back for one thing we are great at.  Today let’s look at the flip-side.  We probably all have one thing we could try to do better.  Why not make today the day we start working on it.  No judgments, no scolding, just sharing one small thing we can improve so the DOC can cheer us on!

While I believe yesterday’s blog subject was super awesome and gave me lots of confidence in the good things I do, I know there are plenty of things I can improve on. One thing I used to be super awesome at was logging. I would test and log like a fiend. I’m not sure what happened exactly, or how I “fell off the wagon” but at some point shortly after starting my pump, I just didn’t log anymore. I stopped logging, period. I don’t know if it was because I felt overwhelmed about starting on my pump, or just was excited about getting my pump and decided to skip the logging. But it stopped, kind of like when a smoker quits cold turkey. I think in my head I felt justified for not keeping records after logging for so many years. I now had this medical device that would hold all of my info for me, so why bother with old school log book, right? Who knows?? What I do know is that I have the resources to log, and I really should start again. Logging helps determine trends and can help catch those things we may miss if we’re not looking at our results in patterns. Logging can also help in setting new basals when needed. I can upload my pump and have the software to do it. I also believe I have the software for my meter as well. While I’m sure these numbers could help my endo, he never asks for a log book, but rather asks me how I run and relies upon my memory. My memory is good, but sometimes I feel I could definitely use some help. Like the intro says, no judgments or scolding, so this is something I could benefit from….

Now for all that swagging I do that I like to call “carb counting”….;)

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Day 2 of dblog week: One Great Thing

Today’s Topic:

Living with diabetes (or caring for someone who lives with it) sure does take a lot of work, and it’s easy to be hard on ourselves if we aren’t “perfect”.  But today it’s time to give ourselves some much deserved credit.  Tell us about just one diabetes thing you (or your loved one) does spectacularly!  Fasting blood sugar checks, oral meds sorted and ready, something always on hand to treat a low, or anything that you do for diabetes.  Nothing is too big or too small to celebrate doing well! 

I feel this is a great topic, but I have to say: I’m not sure I’ll be able to keep my post to just one great thing! You may or may not know, my boyfriend, David and I are both type 1 diabetics. Sometimes I feel we are like a superhero duo fighting against D! (OK, well, that might be a slight exaggeration, but I assure you we do make an excellent team!)  My super-power is how I am able to spot lows, not so much for myself and not only on my boyfriend, but I can spot lows for other diabetics I barely know, as well. (It’s more like a curse, though. Because, really, who wants to be “that person” who points out that it may be time to test…I kind of hate it, at times.) But something I am proud of is how good I am at the testing thing. I’m always testing, I’m good for 8 to 10 times (and sometimes more) a day. I test so often, I have gotten David to test more often because of it, too!

I have to give kudos to my man, though. He carries around a 40 lb backpack full of all kinds of supplies. D and non-D related supplies, as well. He is ALWAYS good for some amazing kind of candy to treat a low. Be it jellybeans, Starbursts or Skittles, he’s your man!! He knows the carb counts for all of those candies, too.  He’s also your man if you’re in need of a syringe, Humalog, glucagon, some One-Touch test strips or a site for a Minimed OR Animas pump! (Yes, REALLY!) He is very impressive, and I’m not just saying that because I love him, but because it’s the truth! He’s also got this cool way of clearing a path on crowded NYC sidewalks for me:) and we do this little thing where we hold each other’s meters for one another while testing on those crowded city streets (or the mall, or wherever we happen to be!)

All in all we’re a pretty awesome twosome, in my opinion! 🙂

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Day 1 of d-blog week – Find a friend Monday

Today’s Topic:

It seems the most popular thing about Diabetes Blog Week is that it helps us find blogs we weren’t reading yet and connect with some new blog friends.  With that in mind, let’s kick off Diabetes Blog Week by making some new connections.  Think about the d-blogs you read that you think we may not know about and introduce us to one that you love!!  Let’s all find a new friend today!    (Special thanks to Gina, everybody’s Diabetes BFF, for helping me title this post!)

This is where I’m supposed to “introduce” readers to blogs they may not know. Hmmm…that may be a difficult one! Most of the blogs I already read are pretty well-known! But I love d-blog week and I do hope to find some “hidden gems”!

So to kick off this blog week, I’ll give a few “shout outs” to the blogs I enjoy reading….

Bitter~Sweet  (of course, duah!)

The Girl with the Portable Pancreas 

The Butter Compartment 

Texting my Pancreas

The Princess and the Pump 

I’d like to share this next one, from a friend who is NOT on this d-blog list. It’s a blog about her d-pregnancy, which I thought some of you might enjoy!

Sweet Child of Mine

I look forward to making new friends this week and reading LOTS and LOTS of new blogs!

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d-blog week is almost here!

Hope everyone had a very enjoyable Mother’s Day! I’m writing because we’re on the precipice of the third ever d-blog week! This would be the second one I’m participating in. I have to give thanks to Karen at Bitter~Sweet, if not for her, my blog would not exist! So a BIG Thank you goes out to Karen!! I’ve been dealing with many things that have kept me from blogging lately. Some of these things I have blogged about, but just have not been published yet. I feel I may hold onto those posts for a while longer, until after d-blog week, but we shall see. I am looking forward to this upcoming week and hope I can keep up!!

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